Handcuffed To The Ocean

Frozen Towels on Steve trying to reduce fever of 103.6

First I want thank all of you who have donated to the Steve Brown Bone Marrow Transplant  Fund. Your continuing donationas are of tremendous help to me. I have to add a new drug to the plethora drugs they already have me on. They said they had to get “prior authorization” for it. So I suggested I just go ahead and buy it. It is kind of critical that I get it. I asked how much it was and the pharmacist  said a 30 day supply of these pills sells for (are you sitting down?) $6000. The donate button to the left still works. Thank you so much.

Sorry that I have been missing in action latley. These last three weeks have been particularly rough. The good news is that they did the DNA tests on me and the donor grafted in 100% . So that is excellent. Once the donor grafts he begins to reject my body. This called graft vs host disease. He attacks my various organs. So far he has attacked my skin and my eyes. 

 I have not been able to read a computera screen for 3 weeks. But it is better  today. I had to be readmitted to the hospital twice because of fevers in the 103.6 range. I was back in for 8 days. Out for 3 days and then back in for another 8. Now I am out staying in this apartment close to Shands Cancer Hospital in Gainesville Fl with a 24   Hour hour caregiver.

My good writing buddy Jeffrey “hammerhead ” Philips came up and relieved my wife for a few days as my caregiver. That was the second time my fever went off the charts. So we wet towels and put them in the freezer. Then laid them all over my body to reduce the fever. It is really very effective . But once I started vomiting we decided to head for the hospital . Good move  because I was inpatient there for another 8 days.

6 Responses to “BMT”

1. Grace Says:
   August 3rd, 2012 at 9:14 am

   Wow SKB, that picture is shocking and the cost of those drugs is criminal. I won’t get into my anger and disgust at big pharma because that won’t help you.
   When my kids were little and had a fever we would give them cool water sponge baths to bring down the fever and yes, it does work well. I’m glad that you went back to the hospital when you did.
   All the best to you!

2. tobias Says:
   August 8th, 2012 at 1:08 pm

   Hope you are getting better? Havent had any posts so I am worried…will be praying for you..get well soon..

3. Steven Kerry Brown Says:
   August 8th, 2012 at 4:30 pm

   Thanks. I’m here the last three days have been particularly difficult but things are better today. Should get a small post up tonight or tomorrow, probably.

4. tobias Says:
   August 9th, 2012 at 1:56 pm

   Joe was in court on Wed. and according to the docket he is due back in Sept. didnt know if you had gotten around to looking that up.

   09/06/2012 – 09:00 A.M. Wyatt, J. Randall Birch Bldg, Court Room 6B Sirgo, Shawn P. *Discussion
   Wonder if this was just a plea hearing? Doubt he will try for a jury that would be foolish…he may get the gun charge dropped since it wasnt his vehicle, then the $500 charge will go since this was because the gun was stolen, and the other charge is just a mis. so Joe may just do time served. hmmm. Sirgo is good so I wont be holding out for a conviction but one can pray. LOL jmo

5. Grace Says:
   August 12th, 2012 at 12:25 pm

   No offense intended but I don’t find any of the articles interesting or informative. Imo, they are all empty words to keep the public placated. Yes, it’s good to know that the Feds behavioral science folks looked at the case and hopefully they assisted the PCSO as to who to concentrate on but aside from that there is nothing new or hopeful…as usual.
   For me, there are 2 things going on here. One is what happened (the who, what, where, when and how) and two, what SKB thinks happened. They might be one and the same but I don’t know that because I don’t know what SKB thinks happened. Things have changed in the year or so I’ve been posting here with new information coming out. JO and Timmy are not in prison. Ronald, Misty, Tommy, Hope, Donna, WBG and Jerome Williams are. SKB siad LE thinks the 2 responsible are in prison, not what he thinks.
   Again, I UNDERSTAND why SKB is cautious about revealing what he thinks but that doesn’t stop me from being curious and/or trying to make sense of what’s been posted here. So far, it’s about as clear as mud.
   MO

6. Grace Says:
   August 12th, 2012 at 12:39 pm

   My apologies, the above post was meant to be posted in What’s new with the Haleigh Cummings case.

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